SUNDAY POST – LIVING WITH LONG COVID #2

In my previous article, I wrote about the run-up to the crisis that had me in despair, which happened just after my last major relapse in the third week of August. In this Sunday Post, hosted by Kimberly, the Caffeinated Reviewer, I’ll talk about what I discovered when I was well enough to be able to go online and search for more information.

The first couple of times I’d searched, I’d found some rather generic advice and a couple of accounts by other sufferers. But there was nothing specific that I could actually use to help me form any kind of coherent recovery plan. The doctor had organised a blood test, which discovered that I was slightly deficient in vitamin D, which I promptly fixed by ordering the recommended dose of tablets. However, that didn’t appear to make any difference. This time around, my online searching hit the jackpot.

Almost immediately, I came across an article recommending that Long Covid sufferers struggling with chronic fatigue get hold of a book – Classic Pacing: For a Better Life with ME by Ingebjørg Midsem Dahl, which I immediately ordered. I went for the print version, which is a bit of a beast, but I use a bookstand so I’m not holding it and I think it’s by far the better option. There are tables and lists, which are much easier to read on a real page, rather than on an ebook. At long last, I had a measure of the extent of my condition and – even more importantly – a strategy to try and stabilise my symptoms, so that I wasn’t trapped in this miserable pattern of recovery and relapse. The book recommends that I gauge my energy levels, then attempt to operate below my limit to ideally avoid becoming bedridden again.

That said, I was a bit chastened when I realised just how limited my life would be – no more quick trips to the beach for the foreseeable future. But we reckoned it was worth it if it helps my ultimate recovery from Long Covid. It also recommends that I take advantage of any equipment to enable me to rest – like using a bath stool to sit while showering, for example. This has meant I’m able to shower more frequently, which helps my mental health. When I am too weak to shower, most days I can still manage a quick wash while sitting at the sink. I went to the physio to get a set of very gentle exercises I can do lying down, on my good days, to try and stop my body becoming a flabby blob. Though fortunately, so far I haven’t put on any weight. On really good days, I take a walk around the block with Himself, using my walking staff as support to help with my balance issues. I think I’m getting a bit quicker, but a dozing snail could still overtake me with ease.

The other major recommendation was to rest frequently during the day, after each task. This prospect would have left me dismayed – but for the fact that someone online had recommended using meditation. Not only does it assist in resting the mind and body, it also teaches calmness and focus. When I mentioned this to my son, he immediately pointed me towards Headspace, an app I could upload onto my phone. This has been a huge help in helping me rest mindfully, but also to meditate on getting better, keeping positive and being kinder to myself. There are also sleepcasts and meditations to help relax before bedtime, which is important as I have a dysfunctional relationship with sleep that goes back years.

I now keep an activity journal, where I write down what I do every day and give each day a mark out of 10 for my mental and physical state. Himself has been putting these in a graph – I’ve now two months of data, as I’d started keeping the score before my relapse. This is important as Time now feels very odd. Each day runs quite slowly, but when I look back, days and weeks seem to bleed into one another so my perception of what has gone before is completely impaired. And obviously, to aid my recovery I need to understand whether I’m getting better or not, so I need a clear record of what happens on a daily basis.

I no longer make any plans – and this was initially something of a struggle as I’m an inveterate list-maker and each night, I’d work out what the coming day’s tasks would be. But I simply can’t, as I never know how I’ll be feeling. I can have three good days in a row – and the next morning wake up feeling fragile and slightly sick when I move. So it’s best not to add an extra twist of disappointment by then having to put a line through any activities I was looking forward to doing.

I pay close attention to what I eat and drink. Fortunately, I don’t have much of an appetite so I’m not tempted to snack or comfort-eat – but I learnt early on that sugar is not my friend in any form. It makes me tired, depressed and causes joint pain, particularly in my back where I have a dodgy disc, anyway. So no sweets, biscuits, or cakes – I’ve even discovered they put sugar in lots of bread. So it’s sourdough slices for my morning toast and in the evening, there’s plenty of fresh vegetables, often with a side salad, all prepared by Himself. I love my lapsang souchong, but limit myself to two cups a day – and then it’s onto a variety of herbal teas, including peppermint and liquorice; lavender and oat; redbush and turmeric. While I’m aware that caffeine can be inflammatory and it would be ideal to cut it out – there’s a balance. And right now, I reckon I need those two cups of tea in my life.

I need to stay upbeat and positive to get through this – and not just for my sake. Himself has been an absolute trooper throughout – unfailingly kind and nurturing. But I’m very aware that he is under enormous strain, not only holding down an important, safety-critical job, but then coming home and looking after me, while doing all the housework, shopping and cooking. Whenever I’m tempted to feel sorry for myself, I remember that in many ways he has it worse than I do. And whatever the future holds – there isn’t a quick fix ahead of us. I’m banking on being part of the statistical cohort that eventually recovers – I have to believe that. I had a wonderful life before this happened and I want it back. But realistically, I still have months ahead of me – maybe years – whereby I have to focus on pacing myself below what I can do in the hope that gives my body sufficient surplus energy to devote to healing itself. Wish me luck! In the meantime, I’ll try to post updates on my progress and anything I’ve encountered or experienced that might help others in my situation. Thank you so very much for your comments and good wishes – it’s been lovely to reconnect with so many of you. Though please understand that I’m likely to disappear again, as being able to spend any time in front of the computer only happens when I’m feeling at my very best.

I’ve been reading like a fiend during my illness – thank goodness for books, both audio and digital! Without them I’d be gibbering at the moon by now. I lead a very limited life and being able to escape into all sorts of intriguing worlds and adventures has helped to pass the time and keep me entertained. This week I’ve read:-

Assassin’s Bond – Book 3 of the Chains of Honor series by Lindsay Buroker
Yanko and his friends must escape a Turgonian prison and find passage back home before their enemies claim an advantage that could change the world. And not for the good of the Nurian people.

But even more trouble awaits at home. Civil war has broken out, Yanko’s family is in danger, and the man who sent him on his mission has disappeared. If Yanko can’t find Prince Zirabo, he’ll forever remain a criminal and be hunted down by his own people. Worse, his only chance to survive and redeem his honor may be to rely on the one person who’s been trying to kill him since his adventure began.
This next instalment in this entertaining adventure is full of action, incident, quirky amusing characters and laugh-aloud moments. Buroker has become a favourite author of mine over the last few months. I’m so impressed at her ability to tell a cracking story full of tension and emotion and yet still manage to inject real humour throughout.
9/10

The Necropolis Empire: A Twilight Imperium novel by Tim Pratt
Bianca Xing has spent a lifetime on a provincial planet, dreaming of travelling the stars. When her planet is annexed by the Barony of Letnev, Bianca finds herself being taken into custody, told that she’s special – the secret daughter of a brilliant scientist, hidden away on a remote planet for her own safety.

But the truth about Bianca is stranger. There are secrets hidden in her genetic code that could have galaxy altering consequences. Driven by an incredible yearning and assisted by the fearsome Letnev Captain, Dampierre, Bianca must follow her destiny to the end, even if it leads to places that are best left forgotten.
This is a real treat. Pratt’s breezy tone drives this adventure forward with verve and pace which had me really caring for the protagonists. He writes truly nice characters very well, which is harder than he makes it look. Review to follow.
9/10

The Broken Throne – Book 16 of the Schooled in Magic series by Christopher G. Nuttall
The Kingdom of Zangaria has fallen into civil war. On one side, King Randor and his forces, determined to impose his rule over the entire kingdom; on another, the noblemen who want to crush the king; on a third, Princess Alassa and the Levellers.

Caught in the middle, Emily must steer a course between her loyalty to her friend, her duty to people who put their faith in her and her fears for the future. But King Randor has unleashed forces even he may be unable to control…
This is another cracking series that has continued to deliver all sorts of unexpected twists and turns that has me enthralled. This particular episode charts some of the fallout caused by Emily bringing inventions from contemporary Earth to a feudal system driven by magic.
9/10

Battle Ground – Book 17 of the Harry Dresden series by Jim Butcher
Harry has faced terrible odds before. He has a long history of fighting enemies above his weight class. The Red Court of vampires. The fallen angels of the Order of the Blackened Denarius. The Outsiders.

But this time it’s different. A being more powerful and dangerous on an order of magnitude beyond what the world has seen in a millennium is coming. And she’s bringing an army. The Last Titan has declared war on the city of Chicago, and has come to subjugate humanity, obliterating any who stand in her way. Harry’s mission is simple but impossible: Save the city by killing a Titan. And the attempt will change Harry’s life, Chicago, and the mortal world forever.
Don’t pick this one up unless you have read Peace Talks and clearly recall the story or you’ll flounder. The action moves forward from the previous book and Butcher doesn’t hang around. And the title is spot on – the whole book essentially describes an epic battle, from the build-up to the immediate fallout. Review to follow.
8/10

Scorched Heart – Book 4 of the Firebrand series by Helen Harper
My parents were brutally murdered when I was five years old. Their killer has spent the last twenty-five years in prison for his terrible crimes – but I still have unanswered questions. After all, I am the phoenix. When I die, I am reborn in fire and brimstone. It happens again and again and again. I have no idea where my strange ability came from and nobody to ask.

Now another shocking murder has been committed in the small village where my parents died and there is evidence which suggests the killer is supernatural. The crime gives me the perfect reason to return to my childhood home. I can offer my expertise as a Supe Squad detective – and seek the truth behind what I really am. The trouble is that I might not like what I find.
In this, the fourth instalment of this exciting Brit-based urban fantasy featuring Emma, we finally discover the mystery behind the tragedy that has overshadowed her life since she was five. Harper’s pacy plotting and engaging characters have drawn me into this world and I really enjoyed the twisty climax to this tense murder mystery.
9/10

Owl’s Fair – Book 2 The Owl Star Witch series by Leanne Leeds
Once Astra Arden realized her life’s direction had been chosen for her by the goddess Athena, the former witch tracker did her best to adjust. After all, there were destinies you could fight to change, and there were destinies that, when refused, might get you turned into a stone statue for eternity.

When the altruistic Alice Windrow comes to Athena’s Garden for a tarot card reading, the cheerful young woman seems to not have a care in the world. Known throughout the town for her philanthropy funded by a distant relative’s substantial inheritance, she only wishes assurance that the marathon she sponsored will come off without a hitch. The reading takes a turn when Athena’s glowing Star Card flips—showing someone has it in for the innocent Alice. Can Astra and her sisters unravel the plot in time to stop Alice’s murder? Or will the generous girl find that her marathon is officially over—for good?
I’d found some of the reads this week a tad intense – so I went looking for something a bit more lighthearted. And recalled that I’d recently read the first book in this enjoyable urban fantasy series about poor old Astra having to move back home and being tasked to prevent murders before they happen on behalf of the goddess Athene. She even has a talking owl for help – though Archie provides all sorts of problems along the way, too. This enjoyable offering is skilfully plotted, with plenty of twists and tension along with the laughs. Just what I needed!
9/10

Thank you so much for visiting and commenting. I’m very aware that right now, it’s a very one-sided relationship and I don’t know when I’ll be in a position to start to reciprocate. In the meantime, do take care and have a lovely week:).